A mini-documentary launched today by #DefendNZ, a movement giving voice to New Zealanders opposed to all forms of euthanasia, features a young woman who lives with Ehlers-Danlos Syndrome, an incurable connective tissue disorder.
Kylee Black, 32, has had the genetic condition since childhood and now needs a wheelchair in order to move about, is concerned about the effect euthanasia legislation currently in Parliament – the End of Life Choice Bill — would have on her own life as well as the lives of others with terminal conditions or other forms of disability.
“I have difficult days and those days I don’t need to be confronted with easily accessible death,” she told the New Zealand Herald. “If assisted suicide is legal it would be legal to promote it. I don’t want to be triggered by assisted suicide ads or flyers.
Kylee is heavily reliant on other people and she acknowledges that her medications and several surgeries do not come cheap. “I have multiple specialists and go to hospital many times a year. I know my care costs a lot of money. But I also know I contribute to society.” Still, a law saying she could choose to end her life could make people in a similar situation feel they have to justify their share of health resources.
Read more at Mercatornet