“It’s like we’re keeping her memory alive through talking about her, sharing her story with other people.” Krysta Davis talked to The Stream about her daughter, Rylei, who lived one week after birth.
Doctors diagnosed Rylei with anencephaly when her mom was 18 weeks pregnant. It is a fatal diagnosis. Babies who have the defect don’t have part of their brain or skull. Most babies with anencephaly don’t survive past birth. At most, doctors told Krysta, she’d have 30 minutes to hold her precious baby after she was born.
A high-risk OB/GYN gave Krysta and Rylei’s dad, Derek, two options. Krysta could choose to induce and have the baby then or carry her to term. It wasn’t much of a choice. In any event, their baby would not survive.
‘This is What We Are Going to Do’
The couple decided to carry Rylei to term. “Because, in the end, I’d much rather be able to hold my baby at full term than having this teeny tiny little baby at 20 weeks,” Krysta explained. “Plus, I wanted to give her whatever chance she might have for us to be able to spend some time with her if she was born alive.”
Krysta and Derek got a second opinion. They were given the same diagnosis, but this time they were told if Krysta carried Rylei to term she’d be able to donate the baby’s organs. “We kind of just looked at each other,” said Krysta. “We were like, you know, this is what we’re going to do.
“Hearing that we could also donate her organs just made things that much better knowing that we could also help other mothers not have to feel this pain that we were going through.”
Read more at The Stream